Gratefully, Jason flew up on Saturday and is now with us in New Hampshire. He felt so much better once he saw his Kate and was able to hold her. I feel so much better to see him, to hug him and for us to be able to lighten the other's burden.
We were originally anticipating being discharged this morning but ran into a complication. Kate did perk up after the blood transfusions but she also developed a distended abdomen and fevers continued to spike to 104. For this reason our physicians felt that she would not be stable for commerical transport and wouldn't discharge us to go. Because Kate's white blood cell count is so low and she is exhibiting some signs of abdominal infection they were concerned about her being away from medical attention for 8 hours. So then a new plan was formed...
Here we are in the middle of the new plan. Kate is currently undergoing a bone marrow aspiration and biopsy. After which she will immediately have a central IV line placed so that she won't get any more "pokes". That poor girl has already had to have 3 IV's placed and have 2 additional blood draws. Late last night her new 5 hour old IV infiltrated and swelled her little arm so much. It was heartbreaking to hear her beg me (again) not to let them give her "any more pokes". After we receive the bone marrow results this afternoon we will know what the diagnosis is and will be able to have a better idea of where to go from here.
Meanwhile, the transport team in Atlanta is fighting with our insurance company to try and approve a medical flight back to Atlanta tomorrow. We are praying that this will be approved and that we will be able to get back there quickly and safely. We are hopeful that this will happen. We are also praying that Kate's procedures will go well and that she will not experience much pain as a result.
We are touched and quite in awe at the outpouring of love and kindness that we have been shown by our families, friends, community and complete strangers. Now we can only pray that all of the prayers offered on Kate's behalf will be answered.
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2 comments:
Carolyn and Jason - I was shocked to read about Kate - we will be praying for her and for comfort and peace to be with you and your family. Andrew and I are only about 2 hours from Dartmouth if you were to need our assistance with anything or just need a visit from friends. But I hope that you get back to Atlanta quickly and safely.
Love, The Adams Family
Andrew, Bunny, Layne, Rowan & Eden
Carloyn, I know you and your family do not need more tears over this but I have cried for Kate and your family. I guess b/c she is so close to Ryan Hinckley' age and b/c I have a relationship with your family this has felt so personal to me. All of you and especially Kate are in our family prayers and in my perosonal prayers daily. I also wanted to tell you I know 2 onc/pd nurses at Eglestons. Anne VanScoy is Ryan's cousin and her friend Nora(can't remember her last name rt now). They are WONDERFUL. As I'm sure all of the nurses there are. Ryan called Anne to let her know Kate would be coming. She said she would keep an eye out for her. Both Anne and Nora work with children doing outpatient treatment. Hope this gives just a little help to know about at least 2 of the nurses there. Again, I'm thinking about you and truly hope for everything good for you and your family.
Love Wendy
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